We may go back to the hospital tonight....depends on Jill's cold....her ANC is 10,000, which freaked me out (they told us that they want to start chemo when she gets up to 1000 or 1500). All this means is that her body is fighting an infection...her healthy WBC's are doing their job. Healthy people typically have between 4000 & 13000 WBC's (the number is higher if you are fighting an infection). Anyway....Jill's doctor is not too fond of letting kids "hang out" at a really high ANC for too long (risk of leukemia cells coming back), but she deems herself more conservative than the other doctors in the practice...she said they would probably be fine with her staying out until after Christmas, as there is no scientific data to show that the longer your #s are high, the more risk involved. So confusing! So here we are...she was scheduled to go back tonight, BUT, she's REALLY congested right now, and they don't want to sedate her (for her lumbar puncture & bone marrow biopsy--both of which are mandatory before starting chemo) if she may have trouble breathing. We may be home for Christmas yet! (Don't know how I feel about this...kind of just want to get it over with, and it's so much harder to go back after being home for so long).
This morning, she woke up bright & sunny, as usual...excitedly pointing to her dresser "There's Dorsee! There's Dorsee!" I laid her down for a diaper change & she said, "Anna upstairs in the playroom watching TV. I wan see my sister. I yuv her." At breakfast, she said, "My medicine ha yittuh bit uh yodurt in it (that's about right...yuck!)." She & Anna are playing together with the Little People Hospital Shana bought Anna for her birthday (I let Anna stay home from school today). They are such great friends (with the every-5-minute squabble). I'm so glad they have each other. And regarding going back to the hospital, the girls both seem much more prepared this time...like they understand so much more. And neither girl seems sad about Jill going back in....Anna will get to spend more time with Johnny & Addie, Keili & Keira, Mikayla & James, & Jill will get to be the hospital celebrity again! And I'll get to not to do chores around the house all day! (Being here 24/7, it's amazing the mess you create). More when I know what's happening (waiting for her dr. to call back).....
Wednesday, December 19, 2007
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Michelle!
The fact that you can be optimistic and joyful alot of the time is amazing! Everyone has hard days and its the fact that you can have a HECK of a hard day and still manage to give big hugs to Anna and make peace at the end is what counts! I'm so glad you stil have the sparkle of hope in your eyes (at least when i see you) because with that , I think anything is possible!!
Tell the Girls hi for me!!
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