New Room

Hi everyone,
Our new room # for now is 562-933-8321. BUT....there's a good chance will be moving again within the next few days....they are trying to get us into a "B" bed (furthest from the door) as those of us who have to stay long-term shouldn't have to put up with all that foot traffic!!

I asked the doctor today why we absolutely HAD to stay at the hospital over the next few weeks...she's doing so well, and doesn't need any meds (except Zofran for nausea, as needed, and nourishment via NG Tube--now just at night while she's sleeping, she's eating pretty good on her own during the day, and IV fluids, both of which we could administer if trained)....she said that these kids (with AML) tend to spike fevers quickly (and she likely will within the next 3 weeks...not necessarily from a virus she catches from someone else, but from something within her own body) & it is very important to start them on antibiotics within the hour. Do antibiotics stop viruses? It's complicated.....in a way....but too hard for me to understand well enough to explain just yet. I'm sure I'll be able to write a medical journal when this is all over.

Okay, so visitors are welcomed, just call first. Oh, and be prepared....she's bald! I'll send pics soon. My little Buddhist Monk....I asked her to go up the mountain & bring me back some Zen....she said, "Here you doh, Mommy....tum den (some Zen)!" She's wiser than we realize :)