A lot of people have asked about visiting Thursday (an incredible # of people....is Thursday a holiday or something? I wouldn't have any clue what's happening in the real world.) Normally (HA! What's that???), it would be fine, but the chemo is hitting her little body really hard right now. She's not eating & hasn't pooped in almost 4 days (too much information!!!!)....this is a big concern with these kids as if they get "backed up", they can contract sepsis, & there's only one way THAT ends. The crazy things we're freaked out about around the clock....a tiny bit of diaper rash, a very low-grade fever, "my ear hurts" (still...she came in with an ear infx & had already been on antibiotics for 5 days), stuff that I would blow off every day before. It's so scary to think, "Oh my God. If we don't control this diaper rash, that could develop into an infection, and she could....she could DIE from diaper rash???" Yep. This is the first time in my life that people (doctors/nurses) are validating my neuroticism. We can't give her a sip of water from a cup that's been sitting out more than 2 hours. (Anna usually wakes up drinking out of the cup she had from 2 days ago.) We have to wash our hands after touching anything that is not "hers"...do you realize how many times a day you do that? You guys, just pray & wish for us that, in the immediate future, this innocent little child will not so suffer too much. It is so heartwrenching to see your baby uncomfortable/in pain & not be able to alleviate it one bit. She is so fragile right now. We are so scared. I need each & every one of you to lift us up....as you have been, every day. Without love surrounding us, we could not do this.
On a lighter note, we would love to bestow some thanks on some incredible people......
My Mom, for being such a help right now. You are always "standing by" waiting for your next order of instruction...not batting an eye, or hesitating a bit. Anna needs you here, right now. I wish you could stay forever.
Jason & Cecilia Hilkey & Heather Bunn for the shiniest, brightest, most enormous sea life balloons I have ever seen. Jill LOVES them..."Dah-fin!!! Way-oh! Fissie!!"
Karen White for your kick-butt banana bread. I cracked up when I read the label "Castrated"....I actually had to ask Matt. No nuts. Obvious. The gift cert to the cafe will certainly be used....I didn't say wisely. I've heard they have some incredibly fattening brownies. And the pre-made labels for our fridge food! Simple, yet ingenious.
My Speechie friends at Launch for taking my mind off my tragedy for 30 minutes while we had lunch together. Thank you from the bottom of our hearts for donating your Emergency Happy Hour Fund. It will cover 5 months of parking at the hospital (do you believe we have to pay for parking????).
The director of Anna's preschool, for allowing Anna to attend 5 full days a week at 3 days a week tuition. This will allow some stability & consistency in her week. (Anna's BFF, Keili, is gonna pee in her pants in celebration....apparently, she's much harder to get ready on days Anna's not there....so sweet.).
Cingular Wireless for donating 750 rollover minutes into my acct at no charge, to "tide us over".
Countless friends who have directed us to resources (financial & other) that will help get us through this.
And lastly, to my Aunt Mary & Uncle Brent for driving down from Fresno yesterday to surprise us with kisses & hugs (and way too many presents), stay for 6 hours, and drive back that very night. Mary's decorating job really lifted my spirits...now if we could just get you people to send pictures to hang from the clothespin line she created!! C'mon people! Step it up! One family photo from each of you is all I ask!
Oh.......a number of people have been asking where to send packages. You can either send to the hospital (address is somewhere in this blog...don't have it memorized yet), or to our house:
672 W. 24th St. #4, San Pedro CA 90731. And we thank you. We could never have imagined this deluge of goodness coming from people with their own challenges, trials & tribulations, committments & responsibilities.
Call before you visit...every day is unpredictable....don't refrain from calling or writing because you think you are "bothering us"....don't come if you even THINK you might be sick....wash any used toys/books you want to lend to Jill & label them so we can get them back to you...and please wash your hands as soon as you enter the room....if you forget, you will be shot :) Also, when Jill's system is wiped out (during & for the first week after chemo, we're asking that no small children come....as much as she would love the company, those little buggers are just too germy :) Thank you for understanding. Can't wait to see you soon!
Love, Michelle
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